Hi I went on Thursday to the clinic where I expected to start new treatment Injection once a week but on arriving saw a new Doctor and he said you have had a flare up yes my inflamation levels very high they have been up to 111 and 82 so back on steriods and this new doctor said I would be having a home visit from the nurses who would show me what to do within 2 weeks When I read some of the letters sent in from other sufferers I feel my troubles are small compared to young people who have to work and try and keep the home fires burning as it was at least I can rest when unwell but when you have to keep going it is really hard. Yes like everyone else the heat gets to you What also very frustrating is the long wait between taking drugs and seeing the consultant and to be told no the new drug not working. The only relief I have had is the steriods,but keep being told that they are not good to stay onbut all drugs have side effects and sometimes I think what is the answer but we have to keep smiling Lilian-H

Hi Lilian,

Sorry you are having a flare. Did you not start on the new treatment then? Is it anti-tnfs you are starting on?
I hope the flare settles soon and you can get established on the treatment.

Love, Doreen xx

Hi Doreen No I didnt get on to the treatment I expectd to but somehow it had not been put into place when I got to the hospital but as I said someone is coming home within the next 2 weeks thank you for your kind comments Lilian

Hi Lillian,

How are you today well I hope, I have started an exercise routine and have found it great. My mum is a few years younger than you and does Tia Chi exercises very gentle and helps with her fibromyalgia. Thought that may be a help to you, its amazing now what activities are around in everyones area you just have to ask around. Take care love Lorna x